Support Registry Update

June 25, 2024

In support of
Mason Early Family
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Hello all- not much new to report today, which is a good thing.

We had a mostly quiet night- Mason spiked a fever at one point, and because he wasn't able to get Tylenol for quite a while, the nurse tried to turn the thermostat in the room a little colder, after also packing his body with ice packs. I'm not exactly sure what else she did in the room, but whatever it was, it sounded like an airplane was landing inside the room and it set off all sorts of alarms outside of the room because the room pressure was off. It did not make for the most restful night ever.

After the fever broke, the nurse woke me up to let me know that Mason had sweat through his PICC line dressing, and they would need to do a dressing change right away. This is not a fun process for anyone involved as it is essentially peeling away the skin around the PICC lines that are inserted into his arm. By the time that was over, it was 2:30 a.m. and we were both able to get back to sleep for a few hours.

I let Mason sleep this morning, because of the middle of the night activity, and because he was restricted from eating or drinking in order to get a CT scan in the late morning. When he did wake up, he was feeling well enough to get cleaned up, into clean clothes, and was in a generally okay mood as we went down to the CT room, talking the whole time about what cereal he wanted to eat when he was done. We landed on Lucky Charms.

I spoke to the doctors after the CT scan, and there was not much new to report. Mason's numbers continue to tick upward, while the leukemia blasts stay stable, so that is what they would hope to see. They have scheduled his bone marrow aspiration and lumbar puncture for this Thursday. They will also be placing a more sturdy central line, so they will remove the PICC line at that time. They will be transfusing platelets over the next few days in order to make sure they can perform these procedures- they like platelet levels to be around 50, and Mason's are at a 4.

Alex came to visit in the afternoon with Grandma Mary. We finally found a controller for the PlayStation and got logged into a few streaming services. Mason also received a portable DVD player from his aunt and uncle in Chicago, so he has another option with a screen closer to him that he can see better until we can get his glasses to him. Plus many many many DVD options.

I left around dinner time, just as Mason was waking up from a nap, as I haven't been home in 5 days and I need to get a solid night of sleep. Mason was also missing spending time with his dad, as he asked a few times today when he would see him (although some of that may have been because Dad was bringing him a jar of pickles and a bag of oranges)- but really, I think he misses each of us when we are not there.

Tonight I would ask for continued prayers for fever relief, weight and energy gain, and specific prayers for a clear path forward as we meet with the transplant team tomorrow. Again- thank you for your continued support!

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