Support Registry Update

July 21, 2024

In support of
Mason Early Family
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Really short update today- nothing new to report.


The nurse last night found us a magnetic shade for the door, which helped block out the hallway lights. Mason still had a little bit of trouble falling asleep, but we're trying to shift his wake up time a little earlier, and today we stopped caffeine before 3 p.m. We are hoping that helps him get a little more rest in the overnight hours, since they are able to leave him alone between midnight and 6 a.m.


He has a slight bit of nausea, but is trying really hard to avoid anti-nausea meds so that he can be ready to go home when they allow it. He is still eating well and maintaining his current weight, but if he starts to drop any more pounds, we may need to go back on some of the meds to make sure he can take in the calories he needs.


We stayed busy today playing video games, a few fun rounds of Farkle (Mason's luck with games continues and I lost by A LOT), and laps on the floor. We plan to start a movie night shortly. I just popped him a bag of microwave popcorn and we are waiting for the nightly chemo pills.


As much as I have tried to entertain him today, I feel we found a new level of boredom- he has discovered that he can now clap using one hand and the back of his head. And he has randomly throughout the day been working on his throwing aim by sending his dirty socks at my head when I'm not looking- he's hit me every time.


The hospital's on-staff teacher will be in tomorrow, so we will have a chance to discuss a plan for school work as summer winds down around here and the rest of his class goes back to school on August 5th. He will definitely be in a place where he can manage some work if he can continue to tolerate this round of treatment as well as he has so far. After the fourth sock hit me in the head today, I think we are ready for some structure and purpose in our days.


That's all for today- weekends around here are pretty quiet- but we will keep you updated with any new info as we continue to take this journey one day at a time. 

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