August 11, 2024
In support of
Mason Early Family
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Mason Early Family
Hey y'all- it's Sunday night and I am finally tucked back into the hospital with Mason. I've been at home the last few days getting big brother Jack officially moved into Georgia Tech for the fall semester.
I arrived this afternoon. Mason was in a great mood- playing Fortnite and informing me that he fell asleep at 11 p.m. last night, was woken up for some eye drops and labs around 4 a.m. and 6 a.m., woke up for chemo at 10 a.m., but otherwise slept until 2 p.m. He was also 3/4 of the way through a cheese pizza from Papa Johns.
He introduced me to the blueprints that he has drawn up for his new room at home. Because Mason will need to be somewhat isolated when he is able to come home after the transplant, he is moving from his current bedroom, which is right next to the kitchen, back to the bedroom that his big brother Jack just moved out of (for college). It is part of an addition to the back of the house and will allow Mason more freedom of movement with his own living area, including his own access to the backyard.
This move has Mason VERY excited- as the blueprints that he drew out on graph paper proved. He had us send him dimensions for the room and all the furniture in it. His final blueprint has everything placed exactly right so that it all fits- including a brand new gaming area and a separate desk for school work. I would love to submit this to his math teacher for credit- he definitely spent some time thinking things out. We are still very much in the negotiation stage when it comes to budget- this kid doesn't ask for much, but when he does, he has big dreams.
After we decided to end negotiations on the room budget, Mason spent the afternoon trying to teach me Fortnite- apparently his goal for this month of inpatient time is for me to play a round of Fortnite on my own and to win it. Fun for him and for me. (In case anyone needs me during my "spare" time, I will be studying how in the world this game works- this could take awhile!)
During the nurse shift change, I had a chance to have a nice chat with his day nurse who was leaving for the day and his night nurse who is one of my favorites. His day nurse admitted that she has heard the other nurses talking about how cool Mason is, and she thanked him for letting her take care of him today.
They also gave me a little more intel on the new hospital, which we will be moving to at the end of September, immediately following his transplant. Mason was happy to hear that the food at the new hospital will be amazing- since he's not the biggest fan of what they have here. I am thrilled to hear that they have actual real human-sized beds for the parents.
I don't have any major updates on his medical status. We are here. We are on day three out of four of the high dose chemo. He is on the necessary medications to help him with nausea. His weight has remained stable since being admitted last Thursday, which is great (although we do want to see more pounds added).
We have a possible schedule written out for tomorrow that includes time down in the Zone for basketball, time walking laps to keep up our endurance, and time to do school work, which is new this round. We will just keep taking this day by day, and Mason will just keep being the cool kid that all the nurses want to take care of.
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