Support Registry Update

A Work of Heart: Our Special Art Auction Piece for N-Lorem

In support of
Marley's Miracle
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Some projects come straight from the heart, and this one is extra special. Marley and I recently combined two of our favorite things to create something beautiful for a cause that means the world to us. 

We’re honored to be part of an upcoming patient art auction benefitting the N-Lorem Foundation, an organization that has become a lifeline for families like ours. N-Lorem is currently developing a personalized treatment for Marley’s ultra-rare genetic condition, NARS1, and with each step forward, they’ve sparked a hope in our hearts that shines brighter every single day. 

Creating this piece was more than just crafting a canvas — it was a celebration of resilience, joy, and the belief that miracles are possible. Every drop of paint and thread carries a piece of Marley’s story and the faith we hold for the future. 

We can’t wait to show you the final piece of what we made. Stay tuned for the big reveal…

Kayla & Marley 💛🎨🫧🧵 

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Comments

Lcarley026

What an incredible mom you are for beautiful Marley and your precious boys! I’m totally in awe of you!! I believe in Marley’s miracle!!
  • 4 months ago