Maddie's Story
In support of
Madeleine Bloomfield
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Madeleine Bloomfield
Hello all!
We want to thank everyone who has shared our fundraiser or donated so far! I know that some of you may not be familiar with Madeleine's journey up until this point.
If you would like to see a video version you may go over to the Instagram page we have where we post updates about her and things from our life as a family with a medically complex kiddo. The handle to that account is @miraculouslycomplexmaddie
For those of you who aren't into Instagram, I will give you a quick run down here.
When I was pregnant with Madeleine our anatomy ultrasound showed that she has a heart defect called Hypoplastic Left Heart Syndrome. In layman's terms, she is missing half of her heart! In order to keep Madeleine alive, she would need a series of open heart surgeries. After she was born she had her first surgery at a week old. She spent several months in the hospital after her birth combating a myriad of issues but she did eventually make it home!
For 3 weeks...
And then she was hospitalized again for another heart surgery and recovery from a common cold that nearly destroyed her. During that time we also received genetic testing information that showed her to have a one of a kind genetic mutation (a version of Trisomy 1) and doctors simply said they could offer us no information about what her life might look like. She also had her first feeding tube surgically placed because she can not eat by mouth. Ever since her early days, Madeleine has been developmentally delayed and has been in Physical, Occupational, and Speech therapy her whole life.
Since then she has been in and out of the hospital more times than we can count and gotten a plethora of new diagnosis. Everything from scoliosis to sleep apnea! We have even started traveling out of the state to get access to proper care for her. However, in between all the hospital stays and doctor visits, Madeleine has been living her life to the fullest. She has gone on vacations, visited State and National Parks, been swimming, participated in 5k races, gone to school, celebrated holidays, and played 'til her hearts content!
We want to keep giving her more of the same fulfilling and happy life which is why we are so excited for the next chapter that a wheelchair accessible van will open up for her.
The picture attached is a very early picture of Madeleine in the hospital after her second open heart surgery at 2 months old.
We want to thank everyone who has shared our fundraiser or donated so far! I know that some of you may not be familiar with Madeleine's journey up until this point.
If you would like to see a video version you may go over to the Instagram page we have where we post updates about her and things from our life as a family with a medically complex kiddo. The handle to that account is @miraculouslycomplexmaddie
For those of you who aren't into Instagram, I will give you a quick run down here.
When I was pregnant with Madeleine our anatomy ultrasound showed that she has a heart defect called Hypoplastic Left Heart Syndrome. In layman's terms, she is missing half of her heart! In order to keep Madeleine alive, she would need a series of open heart surgeries. After she was born she had her first surgery at a week old. She spent several months in the hospital after her birth combating a myriad of issues but she did eventually make it home!
For 3 weeks...
And then she was hospitalized again for another heart surgery and recovery from a common cold that nearly destroyed her. During that time we also received genetic testing information that showed her to have a one of a kind genetic mutation (a version of Trisomy 1) and doctors simply said they could offer us no information about what her life might look like. She also had her first feeding tube surgically placed because she can not eat by mouth. Ever since her early days, Madeleine has been developmentally delayed and has been in Physical, Occupational, and Speech therapy her whole life.
Since then she has been in and out of the hospital more times than we can count and gotten a plethora of new diagnosis. Everything from scoliosis to sleep apnea! We have even started traveling out of the state to get access to proper care for her. However, in between all the hospital stays and doctor visits, Madeleine has been living her life to the fullest. She has gone on vacations, visited State and National Parks, been swimming, participated in 5k races, gone to school, celebrated holidays, and played 'til her hearts content!
We want to keep giving her more of the same fulfilling and happy life which is why we are so excited for the next chapter that a wheelchair accessible van will open up for her.
The picture attached is a very early picture of Madeleine in the hospital after her second open heart surgery at 2 months old.
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