Support Registry Update

The Road so far...

Lukah Valentiner photo
In support of
Lukah Valentiner
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One month ago, Lukah and I set out for a quick MRI for suspected injury related to a backflip gone wrong causing Vestibular Migraines.  Nope, wrong path. Lukah was found to have a 4th Ventricular Mass and we we're sent to Primary Children's.  The mass was determined as a malignant Medulloblastoma after an 8 hour surgery to remove the tumor. For the next two weeks, Lukah underwent OT, PT and ST inpatient attached to an EVD which controlled the pressure in his brain as well as drained the excess cerebral fluid. Lukah met and exceeded every milestone. He's a fighter!. Last week he underwent a small surgery to place his port and a Lumbar Puncture.  Good news! Zero malignant cells in his spinal fluid.  That was the easy part.
 On Monday Lukah begins 12 - 16 months of radiation and chemo therapy. He will be traveling to SLC Monday - Friday with at least one 2-3 day inpatient stays at Primary per month.  Albeit he is a full sized human, he's 17 and under the care of pediatrics and can not recieve treatment at a closer location.  Right now, I am working a full time job and maintaining our household and company. We are in the pre-build stage of a 14 month construction project which will have Kaj on-site daily in a couple of weeks. We are grateful for the work we have to cover the unknown medical bills we have yet to receive, the treament cost and associated travel for the next year.  We are currently looking for what we call the Kemo car to safely and economically transport Lukah daily to SLC throughout our unknown winter conditions. Xander will be Lukah's personal chauffeur, but our current vehicles need to be in use to pay the bills. 
We are grateful for my dear friends who started this campaign. 
We are grateful for each and everyone of you. We are overwhelmed with your love and surprisingly, I am at a loss for words. Thank you. 

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Comments

Chrystal Mecham about 2 months ago

Thank you for the update mama. It means a lot to know what is going on. Love you!

Melissa Holtan about 2 months ago

Love y”all! That which doesn’t kill you makes you stronger . Chemo and radiation are tte hardest part and I’m glad that you have a huge support system . You have so many friends and extended “family “ - I’m sending my witchy vibes in his /your direction . He is young and strung abd will be farming a new head of hair in no time . Something we caJun asses have no problem cultivating. Life is hard . Just when you think it couldn’t get any harder… it does, and it’s better than the alternative . This is a test . It’s all a test. This too shall pass and head to great triumphs and bigger mountains and the strength to climb them. We are on the downhill slope . He is on the up . Just keep making noise and singing loud so he knows where to find you . Make sure he has plenty of music around him . It is life . Rage on my friends