He did it!
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Lewis/Laczko family
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Lewis/Laczko family
Leo made it! The frontal lobectomy went exactly according to plan. He was in the OR from noon to about 9:30 p.m. — a long time to be apart from our guy. They disconnected and removed the frontal lobe, where his seizures originated, and that space will eventually fill with fluid. They did give him some blood, which isn't unexpected.
Since Leo's PMG brain malformation wasn't confined to his frontal lobe, it's always possible that a remaining malformed area could begin producing seizures; that's the case with many of the families we've interacted with in our online PMG support groups. However, our neurosurgeon reminds us that it's common to encounter outliers since these are the folks most seeking connection and support. 75% of patients who go through this operation maintain seizure freedom, and if seizures do develop down the line for Leo, they're more likely to be controlled with medication or an implantation device.
Since Leo's PMG brain malformation wasn't confined to his frontal lobe, it's always possible that a remaining malformed area could begin producing seizures; that's the case with many of the families we've interacted with in our online PMG support groups. However, our neurosurgeon reminds us that it's common to encounter outliers since these are the folks most seeking connection and support. 75% of patients who go through this operation maintain seizure freedom, and if seizures do develop down the line for Leo, they're more likely to be controlled with medication or an implantation device.
Last night:
- Really, really sleepy. He got regular neuro checks overnight to make sure his pupils were responding and that he was moving his arms and legs. After each check, I held his hand until he fell back asleep.
This morning:
- He ate most of a cheese omelet and all of a blueberry yogurt.
- He needed a stitch this morning where some fluid was leaking out, which is what you see in the photo. All is well. No numbing cream for this champ. His head has been rewrapped, so we've seen the incision and his buzzed head.
- He's having a routine MRI done right now.
What to expect over the next few days:
- Seizures, since the brain surrounding the area has been irritated
- Swelling of his left eye
- Moving out of PICU to a recovery floor
Leo has endured more than we could have anticipated in the last year. Even though he's met scores of doctors, nurses, and surgeons who poke at and prick him, he's guileless. He continues to be patient, happy, and trusting. Just the sweetest kid.
Comments
Susan & Brian Laczko almost 2 years ago
Spaldo54 almost 2 years ago
Lanlew0225 almost 2 years ago
Christi Anglea almost 2 years ago
Christine Laczko almost 2 years ago
Liz.c.stephany almost 2 years ago