We have new OR dates for Leo in mid-August. Brian, Leo and I will fly back for Leo's intracranial EEG, the results of which will determine whether a frontal lobectomy is sufficient or a full hemispherectomy. About a week after the EEG procedure, he'll have the second procedure.

Leo has been mostly stable, having had only a few seizures since we returned from LA, and he's making progress in his weekly occupational and physical therapies. But after his most recent seizure, which our daughters were in the room for, we decided this needs to be done ASAP. We've asked to be considered if an earlier date opens up, even if it's last-minute. Since our original surgery date was in February, and Leo's seizures started a year ago, we're antsy to fix this for him.

Today, I'll tour an inclusive preschool as a potential child care solution for Leo this fall. It includes both kids with special needs and kids who are typically developing, and those with medical conditions requiring therapies can have their sessions there during the day. While the preschool is inconveniently located across town, it would mean Leo could regularly be around other children, in the care of trained adults, we wouldn't spend hours each week driving to and from therapy sessions, and I could go back to work full-time. Wins all around.

It's hard talking about wins because the biggest challenge right now is Leo's medication. A fourth medication was added after our last LA trip, and now that he's on it full strength, it's absolutely wiping him out. He can hardly sit up, and he keeps dozing. He's also battling a cold, which doesn't help, since he isn't eating or drinking much. It's heartbreaking to see this playful 18-month-old zapped of energy.