As summer begins, we wanted to share a quick update on what lies ahead for our family and some of the exciting opportunities we have planned for Levi and Charley.

In just a few weeks, we will be heading to Nashville, Tennessee, for a five-day treatment protocol with the Neurogena pop-up Dezawa Muse Cell Clinic. Muse cells (Multilineage-differentiating Stress Enduring cells) are a unique type of regenerative stem cell that researchers are studying for their potential to help repair damaged tissue and reduce inflammation. Early research has shown promising results in neurological conditions and brain injuries, making this an exciting opportunity for Levi as we continue searching for therapies that may help him reach his fullest potential.

Following this treatment, our focus will be on intensive therapy. Our hope is that by combining regenerative treatments with consistent, targeted therapy, we can help Levi continue building skills and making meaningful gains. As always, we are committed to giving him every opportunity to grow, learn, and thrive.

We will also be consulting with the medical team to determine whether this treatment could benefit Charley as well. If we believe it could improve her quality of life, we will move forward with treatment for her during our time in Nashville. 

Later this month, we will travel to the Los Angeles area for Charley to have surgery with a world-renowned reconstructive surgeon. We met him last month at a conference (pictured with Charley below) and are hopeful that his expertise will help improve Charley's quality of life. As many of you know, Charley has faced unique challenges resulting from facial paralysis and some congenital differences with her ear. 

As her parents, this is something we have spent a great deal of time praying about and carefully considering. We are incredibly proud of Charley's courage and resilience, and we ask for prayers that her surgeries go smoothly, that her recovery is uncomplicated, and that she feels surrounded by love and support throughout the process. 

 A side note for those who have followed our journey from the very beginning and faithfully prayed for Charley's medical needs: we recently received encouraging news. In May, Charley underwent a repeat MRI to monitor the arachnoid cyst on her brain that was discovered last year, and we are grateful to share that it has not grown. We will meet with a neurosurgeon next month to review the results and discuss next steps, but we are hopeful that the recommendation will be continued monitoring rather than intervention. We would appreciate your continued prayers that the cyst remains stable and that it has no significant impact on Charley's health, development, or quality of life in the years ahead. 

We are continually humbled by the generosity of this community. Your prayers, encouragement, and financial support make it possible for us to pursue treatments, therapies, and specialized care that would otherwise be out of reach. Thank you for walking this journey with us, celebrating victories alongside us, and believing in Levi and Charley every step of the way.

We are hopeful for what this summer may bring and look forward to sharing updates along the way. 

With gratitude, 

Meagan