Update from yesterday’s CareBridge update
In support of
Leah Catlin's Burn Support
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Leah Catlin's Burn Support
Leah had a successful laser procedure this afternoon. Her procedure wasn’t till 3 so she wasn’t able to eat all day. Ever dealt with a hangry 2 year old??? We knew we had to get creative so we loaded her up early and headed to the children’s museum to distract her as much as we could. And honestly she did really well all things considered. We probably only had 10 hangry episodes where she begged for snacks but we were able distract her with carousel rides and hide and seek in the mirror mazes. Thank goodness for an amazing Children’s Museum!
By the time we headed to the hospital she was nice and tired which also worked in our advantage. Our surgery team and OT team had prepped the surgery center well for Leah. They knew in advance that she was going to need extra care for what the burn psych is currently calling medical trauma-meaning she’s terrified of all medical care spaces and professionals. They gave her good meds before taking her away and she was nice and tired from playing all morning. It was the best hand off Leah has had.
The laser procedure went well and as expected. Leah will feel like her arms are sunburnt/rug burnt for the next few days. The OT team was denied access to the surgical suite, (thanks hospital politics) despite it all being pre-approved by the surgeon ahead of time, for casting purposes so they had to wait until she as in recovery to get her right arm casted. But thankfully Leah stayed calm and sedated and they were able to get a good full arm cast in place. We are prayerful that her skin will do better with the cast materials this time so she won’t have any reactions or bruising. This form of casting is ideal for Leah’s contractures and trauma and if she can not have a reaction, they can continue to cast her. This will really make a difference with the amount of grafting that she will need for her January appointment.
Leah will continue with her OT appointments even with her cast on because she’s really been doing better with the outpatient OT center. She’s developed a good rapport and doesn’t seem as scared of the surroundings and the team wants to keep that consistent for her.
Praise! Leah has been doing a bit better with home care stretches too. We are calling them “gentle hands” and trying to take it a bit slower and calmer and she has been responding better. We are trying to just get her used to people touching her right hand and arm without stretching every time so that she isn’t triggered every time someone touches her.
We have found a therapist and Leah will soon begin play therapy and EMDR to help us try to calm her nervous system.
Ways to Pray!
Healing from today’s laser procedure goes smoothly with no side effects.
Leah’s casting will have no negative side effects.
Calming and healing for Leah’s nervous system
Continued stamina for parents and caregivers.
Leah had an allergic reaction to something unknown during surgery. They think it was a contact reaction to possibly the detergent? Pray this goes away quickly and without side effects.
Meal train:
https://www.mealtrain.com/trains/kv143r
Leah’s rehab Amazon page (if it’s empty, we occasionally add):
https://www.amazon.com/hz/wishlist/ls/FCBEDJDEKDNW
By the time we headed to the hospital she was nice and tired which also worked in our advantage. Our surgery team and OT team had prepped the surgery center well for Leah. They knew in advance that she was going to need extra care for what the burn psych is currently calling medical trauma-meaning she’s terrified of all medical care spaces and professionals. They gave her good meds before taking her away and she was nice and tired from playing all morning. It was the best hand off Leah has had.
The laser procedure went well and as expected. Leah will feel like her arms are sunburnt/rug burnt for the next few days. The OT team was denied access to the surgical suite, (thanks hospital politics) despite it all being pre-approved by the surgeon ahead of time, for casting purposes so they had to wait until she as in recovery to get her right arm casted. But thankfully Leah stayed calm and sedated and they were able to get a good full arm cast in place. We are prayerful that her skin will do better with the cast materials this time so she won’t have any reactions or bruising. This form of casting is ideal for Leah’s contractures and trauma and if she can not have a reaction, they can continue to cast her. This will really make a difference with the amount of grafting that she will need for her January appointment.
Leah will continue with her OT appointments even with her cast on because she’s really been doing better with the outpatient OT center. She’s developed a good rapport and doesn’t seem as scared of the surroundings and the team wants to keep that consistent for her.
Praise! Leah has been doing a bit better with home care stretches too. We are calling them “gentle hands” and trying to take it a bit slower and calmer and she has been responding better. We are trying to just get her used to people touching her right hand and arm without stretching every time so that she isn’t triggered every time someone touches her.
We have found a therapist and Leah will soon begin play therapy and EMDR to help us try to calm her nervous system.
Ways to Pray!
Healing from today’s laser procedure goes smoothly with no side effects.
Leah’s casting will have no negative side effects.
Calming and healing for Leah’s nervous system
Continued stamina for parents and caregivers.
Leah had an allergic reaction to something unknown during surgery. They think it was a contact reaction to possibly the detergent? Pray this goes away quickly and without side effects.
Meal train:
https://www.mealtrain.com/trains/kv143r
Leah’s rehab Amazon page (if it’s empty, we occasionally add):
https://www.amazon.com/hz/wishlist/ls/FCBEDJDEKDNW
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