Week 8.5 Update 9/15/2025
In support of
Kis-Young Family
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Kis-Young Family
Yesterday, Sunday, 9/14, marked 2 weeks of being in Houston, Tx at TIRR Memorial Hermann. The inpatient rehab that they offer here is really great. They put so much effort, care, and attention during their therapy sessions with Christopher and watching them work with him continually sparks hope in his recovery. The Physical Medicine and Rehabilitation (PMR) doctors that are steering his care here and are knowledgeable and helpful in answering our many, many questions. In particular, those related to his minimally conscious state and medical complications like neurostorming.
As I mentioned last week, the neurostorming was a hiccup to his ongoing rehab but it feels more like a wrench. If you're interested in learning more about it, it is also called paroxysmal sympathetic hyperactivity (PSH) and a quick google search would probably explain it to you better than I can. The PMR doctors are addressing this through medications, simultaneously as he continues his therapies. Over the last two days, Christopher's PSH seems a lot more manageable, but he still continues to "storm". By manageable I mean, his heart rate, breathing rate, and blood pressure stay within an appropriate range, but he still postures and sweats a lot. The complications lie in balancing medications that treat his PSH but also allow him to be awake enough to continue with his therapies. I'm hoping the PSH resolves so that he can focus his energy on participating in his therapies and heal his mind and body.
Well, it has not been fun to see him like this, and I am definitely looking forward to better days. The road seems long but we've ALL made it to two months and will continue to do all we can to help him as long as we need. The scariest parts for me are the unknowns and the uncertainties the future holds, but with all of your continued well-wishes, prayers, and support I remain hopeful and steadfast. You have held us all (Christopher and his entire family) in your heart and thoughts and continue to support us in more ways than we can thank you for.
Thank you for reading and sorry I couldn't share news that could bring us closer to home.
As I mentioned last week, the neurostorming was a hiccup to his ongoing rehab but it feels more like a wrench. If you're interested in learning more about it, it is also called paroxysmal sympathetic hyperactivity (PSH) and a quick google search would probably explain it to you better than I can. The PMR doctors are addressing this through medications, simultaneously as he continues his therapies. Over the last two days, Christopher's PSH seems a lot more manageable, but he still continues to "storm". By manageable I mean, his heart rate, breathing rate, and blood pressure stay within an appropriate range, but he still postures and sweats a lot. The complications lie in balancing medications that treat his PSH but also allow him to be awake enough to continue with his therapies. I'm hoping the PSH resolves so that he can focus his energy on participating in his therapies and heal his mind and body.
Well, it has not been fun to see him like this, and I am definitely looking forward to better days. The road seems long but we've ALL made it to two months and will continue to do all we can to help him as long as we need. The scariest parts for me are the unknowns and the uncertainties the future holds, but with all of your continued well-wishes, prayers, and support I remain hopeful and steadfast. You have held us all (Christopher and his entire family) in your heart and thoughts and continue to support us in more ways than we can thank you for.
Thank you for reading and sorry I couldn't share news that could bring us closer to home.
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