Day 30
In support of
Jazmyne's Promise
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Jazmyne's Promise
Day 30
Advocating as a parent in a hospital room is a delicate line. You’re grateful. You respect the expertise. You know these professionals carry knowledge you don’t. But you also carry something they don’t — We carry Jazmyne. We know Jazmyne baseline. We know Jazmyne subtle shifts. We know when something isn’t adding up.
And sometimes, when you push… it ruffles.
Day 30 wasn’t about labs or scans. It was about tone shifts. Tension. The unspoken weight that can fill a room when a parent refuses to be quiet.
Advocating can feel lonely.
It can feel uncomfortable.
It can make you question yourself.
But here’s what we’ve learned in this season of leukemia and transplant care: silence doesn’t protect her — diligence does.
We have learned that being quite doesn’t make her safer. Asking questions does. Double-checking does. Speaking up — even when it’s uncomfortable..does.
In the nine years we have been on this battlefield, we have learned more than we ever wanted to know.
On more than one occasion, we have seen even the most skilled, well-intentioned staff make critical, life-affecting mistakes in Jazmyne’s care. Not out of malice. Not out of neglect. But because they are human. And in transplant care, human error can carry heavy consequences.
So we have accepted the role God has placed in our hands. We are not just her parents — we are her voice, her second set of eyes, her line of defense.
Diligence isn’t distrust.
Advocacy isn’t disrespect.
It is stewardship.
If asking questions makes us “a lot,” then we will be a lot.
If participating in Jazmyne’s care makes you feel “intimidated to do your job,” then that is something you need to resolve outside of our room. You need to ask yourself why thoughtful questions or concerns about Jazmyne care make you feel like you’re “walking on eggshells.”
We are not here to manage the emotions of staff.
We are here to protect our daughter.
It is not our job, as Jazmyne’s parents, to coddle staff insecurities or make ourselves smaller so others feel more comfortable. This is her life. This is her body. This is her future.
We will ask.
We will clarify.
We will suggest.
We will verify.
We will speak.
Not because we are difficult — but because we are diligent. And in this season, diligence is love in action.
If double-checking orders makes us inconvenient, then we will be inconvenient.
If requesting cultures, X-rays, and clarification creates friction, then so be it.
We know we are not the kind of parents who nod quietly at every medical decision placed in front of us — especially in the world of leukemia and transplant care. We have seen too much. We have learned too much.
Passive doesn’t protect her.
Proactive does.
The goal is keeping Jazmyne safe and alive — so she can live her life beyond these hospital walls.
So she can go back to the friends who miss her laughter and smile.
So she can sit in church again, hands lifted in worship.
So she can stand and testify to the strength God has given her to overcome what tried to take her out.
This fight is not just about lab numbers and scans.
It’s about her future.
We advocate the way we do because she has a life waiting for her outside this room. A life with purpose. A life with calling. A testimony that will encourage others walking dark valleys.
We respect the degrees, the experience, the training. But we also respect the 24/7 vigilance that comes from being her parents — the ones who see every subtle change, every new symptom, every shift in her body.
We are not adversaries in this room. We are allies who refuse to sit quietly when something feels off.
If that makes us different, then we will gladly be different.
Because the goal is not to comfort the emotions of staff.
Years ago, being labeled “different” or “not like other parents” would have offended me. I would have internalized it. I would have questioned myself.
But this season has changed me. We know who we are. We know the authority we carry as Jazmyne parents.
Now, I expect to be recognized as different — not like other parents. Different because experience has sharpened us. Different because vigilance has been forced on us. Different because complacency is no longer an option.
Different means we notice what others might miss.
Different means we ask the question before it becomes an emergency.
Different means we refuse to outsource our daughter’s safety.
We will not stand before God one day wishing we had asked more questions, pushed a little harder, or trusted our instincts sooner.
Our responsibility is not to be agreeable.
Our responsibility is to be faithful.
And faithfulness, in this season, sounds like courage.
“A person’s wisdom makes him slow to anger, and it is his glory to overlook an offense.”
Proverbs 19:11 NET
~In the Mighty Name of Jesus
Comments
Yvonne Sanchez
For we are his workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them. Eph. 2:10
I thank you lord for these parents who refused to fear man who can only end their natural lives, but they have fear of the one who gave them life. And can take that life away.
I thank you Lord for the sensitivity to Holy Spirit that each of them carries. Period in your presence Lord is fullness of joy. And your presence is the confidence and security of every jot and Tittle that has been assigned to them. Thank you for continued clarity and courage to fulfill this assignment, in the name of Jesus.