Cool Toys

How cool am I?  I got all the cool toys.  My brothers must be jealous!  

Plus, I get to ride a horse! It’s called Hippotherapy and the treatment utilizes specific equine movements to address functional therapy goals or short version: as the horse moves it moves my hips like I’m walking.

All this equipment is just to help me. I even have a special bath chair called a Splashy.  Since I can’t sit by myself and I’m getting bigger it’s hard and dangerous to hold on to me in the water.  Mom said soon I’m going to need a lift to help me in and out of the tub.  Just lifting me is hard on the back.  My dad is strong, but it’s going to get harder.

There will be more “toys” as I get older.  And they are all mine; I don’t even need to share like my brothers have been told to do.  The “toys” I get come with labels like “special needs”, “disability” and “adaptive” to name a few.  And along with those labels come with hefty price tags.  I’ll give you an example: The Tomato seat I’m in that helps me sit up, the cost is around $850 for both pieces.  And most of the time insurance doesn’t cover what I need to help me.  Just like the therapies I’m going to in North Carolina, insurance doesn’t cover, but the therapies are helpful in development and progress.  I don’t know what my limitations are and that’s why I need to keep trying.  That’s why my parents advocate for me.  That’s why I have all the cool toys.