Support Registry Update

Rylie’s test results and Shiloe is back at the ER

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Garza Family
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Good afternoon, 

The news today is not good. I wish that was not the case. Rylie’s test results came back last night and it is NOT meningitis. It is bacterial, it’s a bacteria that gets on your skin and it’s very harmful if it gets into your body and that’s all doctors know. The MRI showed that the source is not her spine or her brain. And doctors are currently working to figure out the source in her body that is causing all the symptoms so they can treat it. So they currently have been throwing antibiotics at her, but Rylie is getting worse. As of now she is unable to walk from how much pain she is in, doctors have her on Oxy to control her pain. And Ashley said that they are just doing more tests and imaging. 

As for Shiloe, her leg that has the over growth from her CLOVES has had consistent swelling since coming back from the hospital. And today was woolen enough to have her doctors concerned and they asked her to return to the ER down at children’s. Clayton is now with Shiloe in the ER and Ashley is with Rylie. Clayton’s sister Isabella and her husband are with the other babies for today and we are all just going a day at a time now… 

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