Yall! Elijahs body is loving this clinical trial medicine. HIs numbers are the proof! The goal is under 2 and he is officially at 2.9!!! I think we will need one more dose change and then it will all be maintenance from there. I am waiting for a message back from the doctor to see if we will make the changes before our appointment next week or not. I am so happy that he is responding so well and I love seeing the changes in him. I pray it continues to make a difference in his life. 

We did have an appointment with the sleep clinic this morning and we are going to go back to his BiPap and see how he does. Hopefully it is helpful. He needs sleep and so do I!