I don't know what my insurance is doing but let me tell you I have to deal with 3 pharmacies!  Mayo Specialty, CVS Specialty, and regular CVS.  I received my Tukysa today that stuff is $26,000, I guess paying $130.00 deductible isn't so bad. I will get the xeloda (cape.....) Wednesday I am interested to see how much that is. I know the deductible is $650.00 but I will see if there is a grant program. In my welcome packet they have all three meds on papers when I started each pill and when I have my infusion. It gives me a weekly calendar that I check off when I took the pills twice a day and a note section where I can write down how I am feeling.  It has a 12 month supply and I can get more off their website. I love how organized it is. Which is important since I have seizure, thyroid, and other meds I need to keep track of.

Last Thursday my friend Vera passed away. She was 46 years old and left behind her husband and 2 children 12 and 10 years old. My heart was so heavy. Every time I am on my way to Mayo I always see the Via de Ventura sign and it makes me think of her because Ventura was her last name. She was so full of life and positive through out all her challenges. I watched her funeral Sunday morning online in Massachusetts. It was a gray sky there but here it was blue. I wasn't able to watch it all to be honest it hits way too close to home.

Friday I brought my work computer and classroom keys to school.  It was good to see my boss and friends. I wanted so badly to see 4th grade but didn't want to interrupt their classrooms, I don't think the teachers would've been happy with me. On our way out of the school Mike was proud I didn't shed a tear. Little does he know I shed them often. It is my way of letting go of my emotions. I have had a lot of changes that I never wanted to happen but yet I trust God in everyway.

This song https://youtu.be/NdWX0QmnM8M?si=pQ-8M0Vzs13kQmVn 
I listen to often. I am so proud of my body and thankful for how strong it is.  I see what other women have gone through on the various medications I have been on and I don't get the severe side effects they have.  I am different than I was in August 25. I don't have the stamina I did, I get overwhelmed mentally, and I deal with a lot of nausea but my spirit that is stronger than ever! No matter I am thankful for every single day I wake up and I can walk, talk, and be with my family. 

Some may look at how many different treatments I have endured and think it isn't a good thing. I put that on the way oncologists are supposed to go through the different steps. Once they had the pathology of the cancer they should've treated it differently. That is why the surgeon said after I had the lumpectomy she wasn't surprised the two chemos I had done didn't really touch the size of the tumors. Then when I researched more about invasive lobular carcinoma and the biopsy done I became a bit more angry.  The doctor should've started me on HER2 chemos because that has been the driving force even though I am HER2 low and then the fulvestrant should be added again since I am ER+.  It's ok I got this, I also know how important it is to have integrative medicine in this journey. 

The food, supplements, exercise, ozone, and iv vitamin C (with b complex and magnesium) help to support my body. That is why I will do whatever I can to keep doing them. They are expensive and insurance won't pay for it but I have to give my body the best fighting chance. 

I will keep you updated on how things are going once I start taking the pills. 

Thank you for your texts, emails, calls, thoughts, and prayers. I treasure them all. I love the funny memes and videos keep them coming! 

Love to all!