Support Registry Update

Tuesday, September 23

In support of
Dana Stein
View Support Registry
Today was the day where Dana met with the larger team to understand next steps and had a follow-up MRI.

First, the good news - aka all the good things she has going for her!
  • She's young, healthy, and active
  • Has 100% performance (aka walking, talking, reading, etc)
  • The whole tumor was removed
  • She has no co-morbidities
  • She also has a positive attitude and hope and the support of so many people (like you reading this!!).

And the medical updates:
  • The tumor is Grade 4. They are waiting on one more test to come back for full pathology, but the team is 80% positive it is glioblastoma.
  • CU Health recommends the gold standard of care which is the following:
    • 6 week combined course of radiation (daily, M-F for the 6 weeks) and chemotherapy (pill form).
    • starting 4-6 weeks from surgery date (this Friday is 3 weeks post-op).

So while they were hoping to receive all information, there's at least a plan in place to get her on the road to beating this!

At the same time, they are exploring options for additional opinions on treatments, which right now potentially include: Duke (tentatively 10/3), Sloane Kettering (virtual), and UCLA (virtual). 

Other things to note:
This Saturday is the Brain Tumor Walk in Denver. If you haven't yet, please sign up if you can to join Dana and the team: https://secure.braintumor.org/site/TR/TeamraiserEvents/DenverBrainTumorWalk?team_id=96065&pg=team&fr_id=4044

Photo today is of Dana in her "Tell Me Something Good" tank and Dana Strong hat on her way to her appointments.

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Comments

N28222

Thinking of you and sending positive thoughts and prayers. You’re a strong woman!!!!
  • 4 months ago

Greg Firestone

We are thinking of you and rooting for you!
  • 4 months ago