Support Registry Update

May 27th treatment update

In support of
Amanda Paul & Family
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Hello everyone. Today I had treatment #4. So it was the 1st treatment of cycle 2. 4 down, 12 more to go. I received my second dose of immunotherapy and my 4th dose of the chemo therapies.

I had a minor setback last week. I ended up in the ER with a terrible headache. One of the things I have to do in my 3rd week of each cycle is receive 3 days of bone-marrow boosting injections to help my body make white blood cells in order to stay healthy enough to keep receiving treatment and avoid getting any infections. Unfortunately there are side effects associated with those. Usually its bone pain which they try to stay ahead of - but sometimes it can be general flu-like symptoms and occasionally headaches. The chemo also alters your hormones and usually induces menopause... which many of you ladies may relate - can cause headaches on its own. What's more, I switched from Zyrtec to Claritin as a regular anti-allergy med which can also cause headaches. So while they have no way of knowing which of these made me miserable (or maybe the perfect storm of all of them). Fortunately, after some IV pain meds and a bag of fluids I was on my way to feeling better. And I made it to Zoe's graduation the next day... WIN. And felt right as rain by Monday.

But lets not focus on the negatives. Here are some positives:
-The nurses are all SO great. Compassionate and confident. It's nice getting to know the oncology staff.
-The other patients and volunteers I have had the privilege of connecting with have been amazing. Some much worse off than me but still so positive and great to be around. Some nearing the end of their journeys and full of hope. Some there for very different reasons but still nice to be "in it" together.
-I was given permission from the nutritionist to lose weight if I want to. As long as it isn't because I am nauseous and not able to eat. I lost 10# this week. Cancer has been a great motivator to clean up my health body, mind, and soul. I am praying that somehow, miraculously, I come out the other side of this even healthier and stronger than I have gone in. I believe He can do that. I have long wanted to be able to take regular walks, have the consistency to watch calories and watch ingredients, and learn how to sit down and rest and breathe and not always do - do- do. Cancer is my opportunity for that so I am embracing it. 
-I am in a ministry training program and I have been able to stay consistent with it. Out current area of study is "soul care" and it has been so timely. I am leaning into the discipline of "solitude and silence". These are not natural to me but I figure if its being thrust upon me, the least I can do is welcome it.
-The meals provided, funds donated, gift cards sent all have been SUCH a blessing. So have all the prayers and messages and visits. Truly. They are getting me through. Where once I may have listened to the lie in my head that would say "people only tolerate you.. they don't ACTUALLY like you". I can no longer give that lie a second thought. I see and feel and hear your love and I am so so humbled and grateful. And I pray the Lord will allow me ample opportunity to pay it back and pay it forward.

Specific areas of prayer:
-energy to engage with kids as able and help them have a nice summer (not just on screens, lol)
-Anxiety at bay
-SHRINK the tumor to nothing! It is already WAY smaller, yay!
-Continued health with blood counts so I can avoid hospital and keep getting treatments on schedule
-Protection from the immunotherapy. While it is a miracle drug for cancer... it comes with serious potential effects on the endocrine system. Some people skate through withe no issues. Some people end up with no thyroid, weakened adrenals, or a compromised pancreas... or other things. I would absolutely love to be a skater.... prayers to that end would be great.

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Comments

Nicole John

Your attitude is beautiful. That in itself shines Christs light ❤️
Now I have a specific prayer list. Thank you for being so open with your journey. My aunt has been through it several times. I am sorry that you are walking this road.
  • 6 months ago

Janelmendorf

Thank you for the update, Amanda. Will continue to pray for you and your family as you go through the treatments; may summer hold some special blessings for you and your family!.
So thankful to hear about the little gifts He so faithfully brings amidst the hard places of this journey. I rejoice with you as you are seeing, embracing and counting them all. Sending a hug your way.
  • 6 months ago

Alan Kinney

Thank you for the informative update, Amanda, and letting us in on what you are experiencing. You are handling the realities of what you’re facing in such a healthy way. We appreciate you!
  • 6 months ago

Mrsheathersalinas

💕sending love and prayers. So awesome to see your spirit is up and such a good attitude through all of this.
  • 6 months ago

Cvergenz

Praying continually ❤️
  • 6 months ago

Trudy Kinney

Praying for you and the family, Amanda. Thank you for the update and the specific ways to pray. Keep just taking the next step with God’s grace!!
  • 6 months ago

Heather Turner

I pray for you often. Sometimes it feels not enough. But want to be helpful not harmful in your recovery and give you and your family the space you need. But praying to God who holds everything and especially you, right now, in His arms - it is more than enough! You are not alone. ❤️
  • 6 months ago

Bookerfortyfour

You are not alone, so many fighting the same battle. Any one of us could be put in this battle too, many of us likely will, as we say this and that..I can relate thinking people may not actually like me, they just tolerate me. I tell myself, it doesnt matter. Even if thats true, God loves me and thats enough. I hope u feel Jesus holding your hand
  • 6 months ago

Ashley.l.byles

Im so glad God has shown you the depth of that lie ❤️ praising God for the goodness He's doing through this and praying you truly do come out healthier, what a testimony that would make! Continued prayers for your health and family ❤️ God give Amanda supernatural strength, health, and peace 🙏🏼
  • 6 months ago